Mother. Daughter. Sister. Early Education Major. Aspiring Teacher. Writer. Poet. Tea Drinker. Chronic Pain Survivor. Reader. Mediation is Life.
Thursday, April 24, 2014
Trust
Monday, April 14, 2014
Sleep, the ever elusive dream
Saturday, April 12, 2014
Meh
Friday, April 11, 2014
so many changes
Saturday, April 5, 2014
Wednesday, April 2, 2014
The Diagnosis
I haven't been able to sleep well tonight. In spite of taking a fircocet to help with my migraine. I no longer feel like I'm going to mentally explode but I miss the days where life was much simpler. The days before this disease(severe dementia and Alzheimer's) took over our lives.
For the past ten years every waking moment of every day has been devoted to caring for him. Major family moments have been missed because he can't be left alone. Graduations, births, reunions, holidays and we haven't been ANYWHERE as a family since he came out here. We never get to go out to eat as a family. My dad can't go to church because he has to stay home with my grandfather. The weekends are my time.
Everybody is on edge and not sleeping and stressed out. Dementia makes him unpredictable, violent, and crazy. And it's all directed at me. When in was pregnant after I moved back home and was put on bed rest. He hit me with his cane. Since then his level of violence has increased. If there is a male home he isn't as violent with me. They won't allow it.
I feel bad for my mom. She's got tough decisions to make. Things we've avoided thinking about for ten years.
Why am I up at 3am?? Well he got out of his wheel chair (finally) and was meddling in the kitchen. He was trying to turn on the oven(which was unplugged). And he had pooped himself and was arguing with me about how the poop got on him. For some reason whenever he goes on himself it's my fault. Like I have magical bodily functions that I direct towards him.
Did I mention my parents heard us arguing and walked in as he tried to whack me while I was holding Ezra??? My dad has to clean him. Bathe him. Wipe his butt. When he lets me I clean his behind. But it doesn't matter cause he just keeps shitting on himself. So in the course of a day I clean three asses, mine, the babies and his.
The decisions we make aren't being taken lightly. This isn't some "they never tried " Scenerio. This is a "we are at our wits end" type of thing. There don't seem to be any other options. We need a break. My moms family is absolutely worthless and useless. So it falls to us. And I do mean us as the collective family, my parents, my brothers and myself, will all be having a meeting this week about what to do.
This a vent/rant/explanation/prose
Shockingly enough my ex kept me busy texting me and keeping me distracted so I didn't lose my shit. Today was scary and stressful. I just keep wondering when is God gonna take him. He just keeps getting worse and more depressed like when will it end?
so tired.
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